Here is my Great Strides Page. Please take a min and read what i wrote i think it turned out great this year. This is such an awful disease and living it every day makes me realize how special every day is. 65 roses is such a beautiful name for something that is so ugly.

 with love Jess

All is well

All is well with me, just another day doing what i do. Had a doctor appointment in Santa Clarita and it went very well. No changes in medication and the doctor was pleased to see i have maintained my weight. The plans are to continue taking excellent care of myself and hopefully make 6 months without another round of IV's. I'm having fun, being on no schedule and spending Monday Wednesday and Friday at pulmonary rehab with my new work out buddies. Please keep Stellan in your prayers, he is such a beautiful baby with such a true fighting spirit. He needs all the good thought he can get, I love reading MckMama, she is such an inspiration in every way. I hope someday I will have the wisdom she possess.

He who has hope has everything-Arabian Proverb

Tell me isn't the sweetest thing you have ever seen.

Here's a wonderful Picture of our day at Universal Studios. I spent the day with my family and it was a great day the weather was perfect! I enjoyed carrying Angel around even if it was only for 15 min. haha The rides were fun and it was a great time.