i have cfrd. im pretty bummed so anyone out there with cfrd i need to know all the details tips and tricks. give me all your info i really need some help.
hope everyone had a good monday
Tuesday, May 25, 2010
Saturday, May 22, 2010
Saturday, May 15, 2010
bed time
I'm laying in bed listening to my feeding machine the first time In months and I feel ashamed I feel defeated I feel relief. As much as I hate it it has the potential to help me do something I can't do. It doesn't seem fair to hate on it. Secretly I'd like to throw it against the wall. Well its not a secret anymore. We have a love hate relationship. (Sigh) my life is getting weirder. The beauties of cf
Tuesday, May 4, 2010
i have been hiding
Its probably no surprise i have been absent.
Its kinda on purpose i must confess. It seems like everyone is moving on in there life, and i don't mean getting new doctors or new place; i mean they are dyeing.
death. It goes hand in hand with life.
but i don't like death.
Its always present in my thoughts. Seeing others I admire pass away and move along to a better place. Its an awful year we are loosing some of our best. The strongest are getting weak the living aren't living anymore.
I don't know how we all do it mourn another death of someone who looks like me, or maybe its your child; niece or nephew. Whoever the person is it hurts.
My Dad asked me why do i read so many stories and how do i handle the loss of another Cyster or Fibro?
well honestly its another person to meet up with in heaven; its someone who is in my thoughts and occasionally if I'm lucky i see them in my dreams. Its weird how i don't know them but at the same time i know them on a different level. Its Cystic Fibrosis that ties us all together. Whether were here on earth or watching in heaven we still have that connection. CF.
SO i have been hiding quietly reading and mourning the ones we lost. I cry for them and there families I pray for their pain and i rejoice they are at peace. I hope someday when its my time everyone shows the support to the ones i love because thats what makes our community one of the strongest.
with love and hopes of good health for all