Started my doctor diary today. My doctor wants me to keep track of my health on a daily basis. What i need during the day example extra xopenex ibuprofen etc.
See the problem is my doctors are very clinical, they feel they need to treat the disease based on statistics, and well I'm not one of those people that's average in CF. My team is new to CF and are following the guidelines very strictly and even though i have lived with CF for 13 years (i was diagnosed when i was 10) I clearly have no idea what I'm talking about. So i need to prove that I'm sicker then what i look. Sounds like a hard task. I mean just because i come to my appointment with make up and hair done doesn't mean everything is fine. Like i told my mom i feel like they think I'm a