Wednesday, March 17, 2010

Late night Mac N Cheese

I just made myself some home made mac n cheese, and for the record...It always tastes better when mom makes it.

Started my doctor diary today. My doctor wants me to keep track of my health on a daily basis. What i need during the day example extra xopenex ibuprofen etc.

See the problem is my doctors are very clinical, they feel they need to treat the disease based on statistics, and well I'm not one of those people that's average in CF. My team is new to CF and are following the guidelines very strictly and even though i have lived with CF for 13 years (i was diagnosed when i was 10) I clearly have no idea what I'm talking about. So i need to prove that I'm sicker then what i look. Sounds like a hard task. I mean just because i come to my appointment with make up and hair done doesn't mean everything is fine. Like i told my mom i feel like they think I'm a hypochondriac. The joys of me

with love

Thursday, March 4, 2010


Another one breathes easy
Miranda, i didn't know you but i can imagine the pain in your family's heart.
My heart aches for you little girl but breathe easy you earned your wings.
Days like this make fighting hard.

Monday, March 1, 2010

please raise your hand if...

you have the best family ever (raises hand)

feeling bad is normal these days. it comes so easy to spend all day on the couch watching some good movies and well, some bad.

I LOVE my family and their be honest i wish i had everyones support like i did almost 3 years ago. I miss those days.

i feel okay i think the oral cipro isnt going to work, just my gut feeling. Maybe i need a tune up with the dreaded hospital stay

raise your hand if your confused (raises hand) :::sigh:::

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