Tuesday, January 26, 2010

Rain Blues

This is Jessica's Mom, I am sitting here reading other CF blogs and waiting to hear from Jessica. Matt took Jessica to her Infectious Disease Dr. today in Valencia. I am impatiently waiting for some news, good news I hope. I know by how the last few weeks has been for her that we are all on pins and needles. Its never good when she coughs up blood. The frustration is overwhelming because she just finished 3 weeks of home IV's. Yet she is not feeling any better as a matter of fact her lungs have an awful rattle. You can put your hand on her back and feel the rattles and hear the wheez. Please wish Jess some good wishes. I know it would make her smile especially now that she has got her blog able to accept comments. Jessica I love you and am patiently or not so waiting to hear from you.Mom xoxoxoxo

Friday, January 22, 2010


rain rain go away come back another day, that seems to be the song stuck in my head for the past week

today was the last round of ivs for me but im concerned about my cough its a deep cough with little mucus but what concerns me the most is the rattlie lung and wheezing i find it hard to catch my breath at times. I put a call into my cf coordinator to see what she thinks
good night

Tuesday, January 19, 2010

Happy 23rd Birthday Jessica

Jessica, Your dad and I want to wish you a very Happy Birthday. We love you so much, and hope you start feeling better soon. I know you feel awful today but I hope that with in a few days you will be your happy smiling self. So, just in case you forgot. (lol) love Daddy and Mom

Tuesday, January 12, 2010

what a cutie!

Hello Baby James Benson
What a cutie! I could just keep him 
such a happy baby
This is James first time in California he is 18 months and probably the cutest little cousin i have with those blue eyes. He's Going to be a heart breaker.

Here is James and poppa Joe Joe
"twinkle twinkle
little boy
how you fill my heart
with joy."

Even though we just met, we love you James


So i was just informed that you cannot leave comments so i figured it out and changed it, here I'am thinking no one reads my blog!
so leave me a comment and say hello!!!

Friday, January 8, 2010

2010 has just begun

it was an early morning dash to get out the door for my appointment in LA, I'm happy to report it was a good visit and we figured out 2 more weeks of iv's for me (yay) my weight was about the same and they are pushing hard for weight gain, so i come to you blogger friends have any of you tried adding 1 tsp of virgin or olive oil to your night time feedings. My dietitian is very confident this will help me add calories so 1tsp per can for your feeding. any ideas

Had my yearly blood work done so that's over with but i think the exciting news is we will be getting our own cf ward in the hospital. definitely the greatest news ever! Over all good visit weight 104 pfts normal range and left feeling comfortable about where I'm going health wise and who is there with me in this wild ride. goodnight

Friday, January 1, 2010

Happy New Year

This is a new year and a new beginning... sadly i start the year with Ivs and the most lovely prednisone , which is giving me all the great things that come with it..mood swings
and high sugars and that taste in your mouth that makes everything taste odd. Sigh

The Joys of CF.

Aaron is having a good night with Trevor drinking there root beer vodka LOL they are funny. They are dumb and dumber for sure! Sorry Aaron but tobi and i are sleeping in your bed...thank goodness he dosnt read this blog LOL

Matthew is hard at work. and I miss him very much.

This Cutie melts my heart!!! She is Matthew's cousins daughter and she is a doll. <3
Im tired and for some reason i cant sleep i think thats another side effect of prednisone only 3 more days. wish me luck....better yet wish the ones around me luck. haha

Happy new years everyone. I hope 2010 is a healthy and eventful year. With lots of Love and good things to each and everyone of you.
Happy New year, keep your loved ones close

Aaron and I Christmas Eve.

Stacy and I playing Miley Cyrus. I <3

Ronald Mcdonald and i at Children's Hospital Christmas Eve.

Melissa And I with her snazzy Pink laptop that my family and i gave her for xmas
She is on Oxygen and has CF like me and is only 14.


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