Sunday, June 21, 2009

to my pappy

happy fathers day to the man who i love so much. The best dad ever.

the only dad i know who gets excited when you show him those huge mucus plugs you coughed up

or tells you that if you poop it will make your head ache feel better.

says he will beat up any doctor if i asked him to.

Only person who will force feed me cause he wants to see me fat.

still at 22, tucks me into bed; mostly just to hook up my feeding machine for me. 

Will rub my head when i don't feel good. Even when he doesn't want to.

Stick up for me when my brother is picking on me.

Do anything to make me smile.

I don't think you can ever be to old to be a daddy's girl. And if you can I don't wanna grow up.

Happy Fathers day to the best dad, i love you so much and im glad that i get to celebrate with you. You always stood up for me and always have the right words when im feeling upset and always always gives the best hugs.
love you pappy

Monday, June 15, 2009


Jessica's  time with IV's finally ended after a long 39 days. Her ID Dr (infectious disease) allowed her to stop 3 days before the 6 week mark so that she could take a well deserved vacation. Vacation you ask? Yep... a Carnival 4 day Mexico Cruise. I had wanted to do a quick getaway with my 2 kids. Only they aren't kids anymore,young adults. I was worried about Jessica going on this cruise because it was not the warm weather we had hoped for. We never put shorts or the dreaded bathing suit on. I can only imagine what the cabin next to us thought when 2x a day they would here her breathing machine and Jessica's says that she really feels no huge improvement after that long on iv's but also felt going longer wouldn't make a difference either. Thats is so frustrating. It use to be that she would feels great after 3 weeks and now she really isn't getting much out of all that antibiotics. Another pain in the neck or finger if you will is that she is having a hard time getting on track for the diabetes testing. I feel strongly that if she would get this new adventure started it would make a difference in how tired she always feels. This is another journey she just isn't ready to start.So, lets hope she has a decent summer and can stay off the antibiotics for more than 2 months. I want my daughter to have some energy and some stamina and so that is why I have decided to bring up the CFRD.(cystic fibrosis related diabetes) Mom...this message was approved by Jess

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